<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
		>
<channel>
	<title>Comments on: Medicine is information</title>
	<atom:link href="http://www.buzzmachine.com/2008/11/30/3890/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.buzzmachine.com/2008/11/30/3890/</link>
	<description>by Jeff Jarvis</description>
	<lastBuildDate>Fri, 10 Feb 2012 04:31:09 +0000</lastBuildDate>
	<generator>http://wordpress.org/?v=2.9.1</generator>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>1</sy:updateFrequency>
		<item>
		<title>By: Carpal tunnel</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-459333</link>
		<dc:creator>Carpal tunnel</dc:creator>
		<pubDate>Thu, 06 Oct 2011 20:11:18 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-459333</guid>
		<description>I’ve been looking so many places for thsi information.</description>
		<content:encoded><![CDATA[<p>I’ve been looking so many places for thsi information.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: rmc</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-406709</link>
		<dc:creator>rmc</dc:creator>
		<pubDate>Thu, 31 Dec 2009 09:08:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-406709</guid>
		<description>PatientsLikeMe is much more than a social networking site for people with the same terrible diseases to come and sob on each others shoulders. The site makes money by selling all manner of data and statistics to market research companies and pharmaceutical companies. I think OKCupid is doing a similar thing.</description>
		<content:encoded><![CDATA[<p>PatientsLikeMe is much more than a social networking site for people with the same terrible diseases to come and sob on each others shoulders. The site makes money by selling all manner of data and statistics to market research companies and pharmaceutical companies. I think OKCupid is doing a similar thing.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Peter Charalambos</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-401423</link>
		<dc:creator>Peter Charalambos</dc:creator>
		<pubDate>Thu, 17 Sep 2009 07:10:34 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-401423</guid>
		<description>We need a few more like you, me and some of the sensible people commenting above. I wrote the following in January&#039;s monthly feature of http://my-health-and-fitness-club.com and got a a lot of feedback from it.

Terrorist attacks killed 2,996 people in 9/11. This is counting the unfortunate passengers on the four airliners and it has since been said that was the most tragic day in the history of the U.S.

Four commercial jets crashed that day....... Let&#039;s imagine if six jumbo jets crashed every day in the US. That would claim the lives of over 750,000 people every year? No one could disagree that it would be a worse tragedy even than 9/11.

This tragedy is happening right now. Over 750,000 people actually do die in the United States every year, although not from plane crashes. They die from something far more common and rarely perceived by the public as dangerous: modern medicine.

Dr&#039;s. Gary Null, Carolyn Dean, Martin Feldman, Debora Rasio and Dorothy Smith concluded a report in 2003 called &#039;Death by Medicine&#039;.  It showed that more than three quarters of a million people in the United States die every year from conventional medicine mistakes which is the equivalent of six jumbo jet crashes a day for an entire year.

Peter Charalambos</description>
		<content:encoded><![CDATA[<p>We need a few more like you, me and some of the sensible people commenting above. I wrote the following in January&#8217;s monthly feature of <a href="http://my-health-and-fitness-club.com" rel="nofollow">http://my-health-and-fitness-club.com</a> and got a a lot of feedback from it.</p>
<p>Terrorist attacks killed 2,996 people in 9/11. This is counting the unfortunate passengers on the four airliners and it has since been said that was the most tragic day in the history of the U.S.</p>
<p>Four commercial jets crashed that day&#8230;&#8230;. Let&#8217;s imagine if six jumbo jets crashed every day in the US. That would claim the lives of over 750,000 people every year? No one could disagree that it would be a worse tragedy even than 9/11.</p>
<p>This tragedy is happening right now. Over 750,000 people actually do die in the United States every year, although not from plane crashes. They die from something far more common and rarely perceived by the public as dangerous: modern medicine.</p>
<p>Dr&#8217;s. Gary Null, Carolyn Dean, Martin Feldman, Debora Rasio and Dorothy Smith concluded a report in 2003 called &#8216;Death by Medicine&#8217;.  It showed that more than three quarters of a million people in the United States die every year from conventional medicine mistakes which is the equivalent of six jumbo jet crashes a day for an entire year.</p>
<p>Peter Charalambos</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Greg Matthews</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386410</link>
		<dc:creator>Greg Matthews</dc:creator>
		<pubDate>Mon, 01 Dec 2008 23:21:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386410</guid>
		<description>Ross Mayfield once told me that &quot;when information wants to be free, it will find a way.&quot;  I think that&#039;s what we see happening in the medical field as it&#039;s happened in other industries.  What&#039;s pretty clear is that there are going to be changing roles played by patients, doctors and insurers . . . and it seems likely that entirely new roles are going to evolve.

I don&#039;t think that anyone has gotten to the bottom of this yet, but I also think that it can only be a good thing for consumers to be seeking as much information as they can find (even if it&#039;s inaccurate or incomplete) and talking about it with their friends, family, social networks  . . . and yes, their doctors.</description>
		<content:encoded><![CDATA[<p>Ross Mayfield once told me that &#8220;when information wants to be free, it will find a way.&#8221;  I think that&#8217;s what we see happening in the medical field as it&#8217;s happened in other industries.  What&#8217;s pretty clear is that there are going to be changing roles played by patients, doctors and insurers . . . and it seems likely that entirely new roles are going to evolve.</p>
<p>I don&#8217;t think that anyone has gotten to the bottom of this yet, but I also think that it can only be a good thing for consumers to be seeking as much information as they can find (even if it&#8217;s inaccurate or incomplete) and talking about it with their friends, family, social networks  . . . and yes, their doctors.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Peg</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386354</link>
		<dc:creator>Peg</dc:creator>
		<pubDate>Mon, 01 Dec 2008 02:49:10 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386354</guid>
		<description>Perhaps we should invite medical doctors to join online conversations about health topics rather than serve as information-site curators. The predominant biomedical model privileges a narrow, severely reductionist perspective on health and illness.

Doctors have as much to learn in these conversations as they do to teach.

Diverse professionals bring valuable points of view, experience, and ideas to health onversations: medical librarians, pharmacists, farmers herbalists, physical therapists, exercise scientists, medical researchers, anthropologists, and others.

Much of the best health information comes from ordinary laypeople who share the deep, concrete knowledge that comes from living and coping with illness, or whose stories of personal change can motivate others to adopt health-promoting behaviors.</description>
		<content:encoded><![CDATA[<p>Perhaps we should invite medical doctors to join online conversations about health topics rather than serve as information-site curators. The predominant biomedical model privileges a narrow, severely reductionist perspective on health and illness.</p>
<p>Doctors have as much to learn in these conversations as they do to teach.</p>
<p>Diverse professionals bring valuable points of view, experience, and ideas to health onversations: medical librarians, pharmacists, farmers herbalists, physical therapists, exercise scientists, medical researchers, anthropologists, and others.</p>
<p>Much of the best health information comes from ordinary laypeople who share the deep, concrete knowledge that comes from living and coping with illness, or whose stories of personal change can motivate others to adopt health-promoting behaviors.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: What healthcare sites do you trust? &#124; Lannie Byrd</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386352</link>
		<dc:creator>What healthcare sites do you trust? &#124; Lannie Byrd</dc:creator>
		<pubDate>Mon, 01 Dec 2008 02:25:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386352</guid>
		<description>[...] Jarvis follows up on the conversation looking at medicine as information. Jarvis advocates &#8220;doctors should act as curators, selecting the best information for their [...]</description>
		<content:encoded><![CDATA[<p>[...] Jarvis follows up on the conversation looking at medicine as information. Jarvis advocates &#8220;doctors should act as curators, selecting the best information for their [...]</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: robertdfeinman</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386347</link>
		<dc:creator>robertdfeinman</dc:creator>
		<pubDate>Sun, 30 Nov 2008 23:43:53 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386347</guid>
		<description>The information that doctors receive is frequently tainted by commercial interests. One of the biggest sources of misinformation takes place in the area of continuing medical education (CME), the seminars that doctors need to take to keep up with their licensing requirements.

This site has as its mission blowing the whistle on conflicts of interest and misinformation. (Jeff should be happy with this instance of citizen journalism.)

http://carlatpsychiatry.blogspot.com/

If the professional parts of the medical information system can&#039;t be trusted why think that the areas aimed at the general public will be any better?</description>
		<content:encoded><![CDATA[<p>The information that doctors receive is frequently tainted by commercial interests. One of the biggest sources of misinformation takes place in the area of continuing medical education (CME), the seminars that doctors need to take to keep up with their licensing requirements.</p>
<p>This site has as its mission blowing the whistle on conflicts of interest and misinformation. (Jeff should be happy with this instance of citizen journalism.)</p>
<p><a href="http://carlatpsychiatry.blogspot.com/" rel="nofollow">http://carlatpsychiatry.blogspot.com/</a></p>
<p>If the professional parts of the medical information system can&#8217;t be trusted why think that the areas aimed at the general public will be any better?</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Evil Pundit</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386337</link>
		<dc:creator>Evil Pundit</dc:creator>
		<pubDate>Sun, 30 Nov 2008 20:21:33 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386337</guid>
		<description>&lt;i&gt;For instance, several estimate that about 5 per cent of sites dealing with cancer are inaccurate, while those dealing with &lt;b&gt;nutrition&lt;/b&gt; (45 per cent inaccurate) and &lt;b&gt;nutrition&lt;/b&gt; (89 per cent) are especially suspect.&lt;/i&gt;

From this sentence alone we can conclude that the Observer is at least 33% inaccurate.

I&#039;d trust the results of a Google search before I trusted what a newspaper said.</description>
		<content:encoded><![CDATA[<p><i>For instance, several estimate that about 5 per cent of sites dealing with cancer are inaccurate, while those dealing with <b>nutrition</b> (45 per cent inaccurate) and <b>nutrition</b> (89 per cent) are especially suspect.</i></p>
<p>From this sentence alone we can conclude that the Observer is at least 33% inaccurate.</p>
<p>I&#8217;d trust the results of a Google search before I trusted what a newspaper said.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Fausta</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386335</link>
		<dc:creator>Fausta</dc:creator>
		<pubDate>Sun, 30 Nov 2008 19:42:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386335</guid>
		<description>In my case, I was seriously ill for several months because an incompetent doctor (who is now retired) could not diagnose hypoglycemia, and then referred me to an incompetent nutritionist who recommended a diabetic diet, which nearly killed me.  If it weren&#039;t for the internet, where I researched because I was too ill to leave the house, I would be dead.</description>
		<content:encoded><![CDATA[<p>In my case, I was seriously ill for several months because an incompetent doctor (who is now retired) could not diagnose hypoglycemia, and then referred me to an incompetent nutritionist who recommended a diabetic diet, which nearly killed me.  If it weren&#8217;t for the internet, where I researched because I was too ill to leave the house, I would be dead.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Michael fitzGerald</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386331</link>
		<dc:creator>Michael fitzGerald</dc:creator>
		<pubDate>Sun, 30 Nov 2008 19:08:37 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386331</guid>
		<description>Let&#039;s face it the citizen-doctor will always choose the latest pill, the world famous surgeon because his illness is more important, urgent and has unique features. The reality is that lots of illnesses get better without intervention, common fatal illnesses usually follow a common and inexorable progression. No amount of internet searching or lawsuits are going to make much impact on this. Using the internet to reinforce a solid education in health care will.</description>
		<content:encoded><![CDATA[<p>Let&#8217;s face it the citizen-doctor will always choose the latest pill, the world famous surgeon because his illness is more important, urgent and has unique features. The reality is that lots of illnesses get better without intervention, common fatal illnesses usually follow a common and inexorable progression. No amount of internet searching or lawsuits are going to make much impact on this. Using the internet to reinforce a solid education in health care will.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Mike G</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386330</link>
		<dc:creator>Mike G</dc:creator>
		<pubDate>Sun, 30 Nov 2008 18:17:36 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386330</guid>
		<description>Gee, what&#039;s accurate in nutrition?  The word of the government that told us trans-fats were healthier than animal fats, and cholesterol was bad for us-- until it found out the reverse was probably true?  God save us from nutrition experts as much as nutrition quacks on the web.</description>
		<content:encoded><![CDATA[<p>Gee, what&#8217;s accurate in nutrition?  The word of the government that told us trans-fats were healthier than animal fats, and cholesterol was bad for us&#8211; until it found out the reverse was probably true?  God save us from nutrition experts as much as nutrition quacks on the web.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Adrian Monck</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386328</link>
		<dc:creator>Adrian Monck</dc:creator>
		<pubDate>Sun, 30 Nov 2008 18:09:14 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386328</guid>
		<description>&lt;a href=&quot;http://www.theannals.com/cgi/content/abstract/aph.1L474v1&quot; rel=&quot;nofollow&quot;&gt;This&lt;/a&gt; is an interesting addition to studies on the reliability of online health information: &quot;To compare the scope, completeness, and accuracy of drug information in Wikipedia with that of a free, online, traditionally edited database (Medscape Drug Reference [MDR]).&quot;</description>
		<content:encoded><![CDATA[<p><a href="http://www.theannals.com/cgi/content/abstract/aph.1L474v1" rel="nofollow">This</a> is an interesting addition to studies on the reliability of online health information: &#8220;To compare the scope, completeness, and accuracy of drug information in Wikipedia with that of a free, online, traditionally edited database (Medscape Drug Reference [MDR]).&#8221;</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Brent Finnegan</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386327</link>
		<dc:creator>Brent Finnegan</dc:creator>
		<pubDate>Sun, 30 Nov 2008 17:58:58 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386327</guid>
		<description>I like what you&#039;re saying here, Jeff. In a perfect world (without malpractice suits) I would agree with you 100 percent. However, the reality of the situation is that the blogging doctors would be opening themselves up to a flood of lawsuits. 

My GF is a nurse, and she has to be very careful with what she tells patients, because they regularly misinterpret advice. We all have different allergies, different medical conditions, different genes. What works for one patient could have disastrous consequences for someone else.

I think lawsuits are the biggest barrier to what you&#039;re prescribing here.</description>
		<content:encoded><![CDATA[<p>I like what you&#8217;re saying here, Jeff. In a perfect world (without malpractice suits) I would agree with you 100 percent. However, the reality of the situation is that the blogging doctors would be opening themselves up to a flood of lawsuits. </p>
<p>My GF is a nurse, and she has to be very careful with what she tells patients, because they regularly misinterpret advice. We all have different allergies, different medical conditions, different genes. What works for one patient could have disastrous consequences for someone else.</p>
<p>I think lawsuits are the biggest barrier to what you&#8217;re prescribing here.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Robert Banghart</title>
		<link>http://www.buzzmachine.com/2008/11/30/3890/#comment-386320</link>
		<dc:creator>Robert Banghart</dc:creator>
		<pubDate>Sun, 30 Nov 2008 16:28:41 +0000</pubDate>
		<guid isPermaLink="false">http://www.buzzmachine.com/?p=3890#comment-386320</guid>
		<description>The article states the results of studies that, “suggest that the quality of web health information is pretty variable. For instance, several estimate that about 5 per cent of sites dealing with cancer are inaccurate, while those dealing with nutrition (45 per cent inaccurate) and nutrition (89 per cent) are especially suspect.” 

[As an aside, it appears that the article itself is at least 50 per cent inaccurate when citing the estimate of those web sites dealing with nutrition in that they cannot be both 45 per cent and 89 percent inaccurate at the time.] 

What is doesn’t show is the results of studies that test the accuracy of medical journal articles and doctor’s advice regarding cancer and nutrition. There is simply no way a physician can keep up on the release of new information on either topic. 
Is there anyone who doubts that doctors would give out at least as variable the percentages cited for web sites?

Even Jeff’s suggestion in his book that doctors create their own websites and curate the information is not a panacea. Looking at just the issues of cancer and of nutrition there are various and (apparently) growing numbers of schools of thought about each and which contradict each other more with the passage of time rather than less.

With the expansion of information on the internet, even with 100 per cent adoption of Jarvis’s curated scheme, the role of any treating physician as the font of wisdom will continue to fall. The “priesthood of medicine ” is toast and the sooner both the priests and the parishioners realize that the better.</description>
		<content:encoded><![CDATA[<p>The article states the results of studies that, “suggest that the quality of web health information is pretty variable. For instance, several estimate that about 5 per cent of sites dealing with cancer are inaccurate, while those dealing with nutrition (45 per cent inaccurate) and nutrition (89 per cent) are especially suspect.” </p>
<p>[As an aside, it appears that the article itself is at least 50 per cent inaccurate when citing the estimate of those web sites dealing with nutrition in that they cannot be both 45 per cent and 89 percent inaccurate at the time.] </p>
<p>What is doesn’t show is the results of studies that test the accuracy of medical journal articles and doctor’s advice regarding cancer and nutrition. There is simply no way a physician can keep up on the release of new information on either topic.<br />
Is there anyone who doubts that doctors would give out at least as variable the percentages cited for web sites?</p>
<p>Even Jeff’s suggestion in his book that doctors create their own websites and curate the information is not a panacea. Looking at just the issues of cancer and of nutrition there are various and (apparently) growing numbers of schools of thought about each and which contradict each other more with the passage of time rather than less.</p>
<p>With the expansion of information on the internet, even with 100 per cent adoption of Jarvis’s curated scheme, the role of any treating physician as the font of wisdom will continue to fall. The “priesthood of medicine ” is toast and the sooner both the priests and the parishioners realize that the better.</p>
]]></content:encoded>
	</item>
</channel>
</rss>

